Let’s give more attention to persons with sickle cell disorder – Nwifuru’s wife

The Wife of the Governor of Ebonyi, Mrs Mary-Maudline Nwifuru, has advocated that government and non-governmental organisations give more attention to individuals living with sickle cell disorder.

Nwifuru made the advocacy in a statement issued in Abakiliki on Thursday through her Chief Press Secretary, Nnenna Oshibe, to mark this year’s World Sickle Day.

She emphasised that the theme for the celebration, “Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy” resonated with the state’s commitment to build a resilient, inclusive, and health-conscious society.

Our correspondent reports that the event is marked annually to promote understanding and address the challenges faced by sickle cell patients and families with caregivers.

She stated the need to amplify their stories, and support them in becoming champions of their health and rights.

The governor’s wife, who is also the Founder of the Better Health for Rural Women, Children, and Internally Displaced Persons Foundation, affirmed her commitment to advancing grassroots support.

She outlined key initiatives by her office in supporting patients, including the expansion of screening and counselling services.

Others include the promotion of premarital genotype testing, especially among the youth, sustained public enlightenment campaigns, particularly in rural and underserved communities.

“Sickle cell disorder remains a significant public health challenge in Nigeria.

“Behind this disorder are children, youths, and families navigating the harsh realities of a lifelong condition but amid these challenges, there is hope in awareness, early diagnosis, quality care and empowerment.”

“Medical interventions are vital, but real progress depends on equipping communities to speak up, seek help and support one another.

“And empowerment through education, advocacy, and inclusion is essential,” Nwifuru said.

She further urged religious leaders, traditional institutions, educators, and civil society organisations to unite in eliminating stigma and ignorance surrounding the disorder.

She encouraged families to show compassion and uphold the dignity of every child living with the health condition.

She commended the unwavering support of the State Government, led by her husband, Gov. Francis Nwifuru, for strengthening the healthcare system and expanding access to essential care services.

She also applauded health professionals, parents, and caregivers for their dedication and tireless service to those living with the disease.